God alone is Sovereign

1 Chronicles 29:11

Yours, O LORD, is the greatness and the power and the glory and the victory and the majesty, for all that is in the heavens and in the earth is yours. Yours is the kingdom, O LORD, and you are exalted as head above all.

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Wednesday, June 30, 2010

Anna Grace - June 30

Last night was a long one. Anna Grace spiked a slight fever last night around 10:00 pm - it's standard protocol in the hospital if they run a fever to draw blood & send it off to see if there is an infection. So, about 10:30 last night Anna Grace had blood drawn. I haven't heard back about the results because the doctors have not yet made rounds, but my guess is no news is good news. There is another heart Mom on the floor who came to pray with me while they had taken Anna Grace to have her blood drawn. I was tired and amotional and just plain sad. It was a comfort to have this other heart Mom pray with me while I could hear my daughter screaming in the treatment room. It can be hard being a heart mom.

So, Anna Grace being the stubborn little thing that she is has decided she is not going to drink the Portagen. When we were at home she was drinking about 30 ounces of formula a day. In the last 24 hours she has only drank about 8 ounces of Portagen. I'm not sure what we are going to do about this. If she carries on for too long they will give her IV fluids to keep hydrated.

I just spoke with the nutritionist who said she needs a minimum of 22 ounces a day. I asked about skimming breast milk and mixing it with Portagen. It's an option. She's going to do some research and get back to me.

Please be praying the by the Lord's hand she will start to drink this formula. We just have to keep her on this for 6 weeks.....

As for her UTI - she is still on the IV antibiotics and they are researching oral antibiotcs that will treat this strain of bacteria. I hope to know more later.

I keep thinking if they would just let us go home I think she would eat better and recover better at home. Somthing to talk with the doctors about........

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