God alone is Sovereign

1 Chronicles 29:11

Yours, O LORD, is the greatness and the power and the glory and the victory and the majesty, for all that is in the heavens and in the earth is yours. Yours is the kingdom, O LORD, and you are exalted as head above all.

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Friday, October 16, 2009

Anna Grace Update - October

We had our appointment yesterday in Greenville with Anna Grace’s Cardiologist, Dr. R. and then with my Maternal-Fetal Specialist, Dr. G.

We started with the echocardiogram and then met with Dr R. to discuss the results. Basically, he reconfirmed what they told us in Charleston – however, there we a few things about her heart which were being “monitored” to see how they grew to help determined her surgical plan in more detail. So, those things we were “monitoring” are her aortic arch – which Dr R. said is too small to use. So, she doesn’t have a “working” aorta. The plan for surgery is to make a “Y” connection off her pulmonary artery and “create” a new aorta. Also, the valve that we saw last time which had an issue is the valve that goes to her aorta and since she doesn’t have a working aorta that valve is no longer going to be an issue. Dr. R. also confirmed that when she is born she will have to be on a drug called prostaglandin which will help keep “holes” in her heart open which normally close upon birth until they can do surgery. Dr. R. said that they are also going to have to do her first surgery sooner rather than later. We can expect her first surgery to be within a couple of days of her birth. The name of her first surgery is going to be the Damus-Kaye-Stancil (not the Norwood like I previously mentioned). If you want more info on the procedure you can check out this website http://home.cc.umanitoba.ca/~soninr/Damus.html Whew, it was a lot to take in.

Then I met with Dr G who looked over the rest of Anna Grace’s body to see how it was developing. Basically, we are continuing to monitor her stomach and esophagus. We won’t know for sure about any of that until she is born. However, everything else about her looks normal and is growing just fine. As a matter of fact, our little girl now weighs 2 pounds and 15 ounces so just shy of 3 pounds. She is in the 70th percentile in weight. That is a blessing!

I go back for another ultrasound in 3 weeks and we won’t have another echocardiogram until the first week in December. The doctors stressed again the importance of carrying her full term and that delivering her in Greenville could be very dangerous. So, please continue praying with me for no pre-term labor and no delivery before December 30.

So…. As always we are TRUSTING GOD with Anna Grace and our family. Thank you all for continuing to pray for us!

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