Here is a picture of sweet Maia. Thank you for praying for her family as they grieve.
Thursday, May 27, 2010
Wednesday, May 26, 2010
Sweet Maia
Please see the most recent post from Maia's family today and PLEASE PRAY for this family as they grieve over the loss of sweet baby Maia.
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Maia passed away today at around noon in the PCICU at MUSC. She was very comfortable, peaceful and in no pain at all. Shannon and I held her very close to us and were with her every step of the way.
We are surrounded by family, friends and our Church, but most of all we feel surrounded by God. Thank you for your support and kind words. We read every single one of them. Details about a service will be posted here as soon as we have them.
You should know – Maia was flat out beautiful today.
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Maia passed away today at around noon in the PCICU at MUSC. She was very comfortable, peaceful and in no pain at all. Shannon and I held her very close to us and were with her every step of the way.
We are surrounded by family, friends and our Church, but most of all we feel surrounded by God. Thank you for your support and kind words. We read every single one of them. Details about a service will be posted here as soon as we have them.
You should know – Maia was flat out beautiful today.
Heart Mom Prayer Request
Below is a BLOG update from the parents of a little girl that we met while we were in Chrleston during Anna Grace's Norwood. This sweet baby (Maia) is just a few months older than Anna Grace with a very similar diagnosis. I am asking all our paryer warriors to include little Maia in your prayers. As a matter of fact, please just stop right now and pray for Maia and her parents. Thank you sweet friends!
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Maia’s vital signs continue to trend in the wrong direction. She is very sick, but the team is doing an incredible job of keeping her comfortable, peaceful and free of pain.
The medical management and surgical options for Maia are very limited and the few available are extreme in nature and have an unacceptably high level of risk for pain and suffering. Shannon and I have placed our role in Maia’s destiny in the hands of God. We are hoping for a miracle, but praying for God’s will to be done. Maia has moved mountains and accomplished more in the past 10 months than I could ever dream to do in my entire life. Today is Maia’s 10-month birthday.
Yesterday we received a visit from Jim Miles and Josh Surratt, Pastors at the church that Shannon and I attend. Their visit cleared some confusion in our minds and was very comforting and appreciated. (Greg you should be proud!) We have lots of family and friends around us. Shannon and I spent the night with Maia last night and held her very close.
Thank you for checking on us. Please keep us in your thoughts and prayers. Here is a post from Shannon and I when Maia was 4 days old, titled “Thank God”:
Just in case you’re checking our blog, we want to thank you God. Thank you for sending us Maia and allowing us to take care of her for you. Thank you for Shannon’s health and strength. Thank you for our family and friends.
We pray that one day Maia will know you well, but in the meantime we will carefully watch over her and try to raise her to be just like you.
Shannon and Elias
______________________________________________________________________
Maia’s vital signs continue to trend in the wrong direction. She is very sick, but the team is doing an incredible job of keeping her comfortable, peaceful and free of pain.
The medical management and surgical options for Maia are very limited and the few available are extreme in nature and have an unacceptably high level of risk for pain and suffering. Shannon and I have placed our role in Maia’s destiny in the hands of God. We are hoping for a miracle, but praying for God’s will to be done. Maia has moved mountains and accomplished more in the past 10 months than I could ever dream to do in my entire life. Today is Maia’s 10-month birthday.
Yesterday we received a visit from Jim Miles and Josh Surratt, Pastors at the church that Shannon and I attend. Their visit cleared some confusion in our minds and was very comforting and appreciated. (Greg you should be proud!) We have lots of family and friends around us. Shannon and I spent the night with Maia last night and held her very close.
Thank you for checking on us. Please keep us in your thoughts and prayers. Here is a post from Shannon and I when Maia was 4 days old, titled “Thank God”:
Just in case you’re checking our blog, we want to thank you God. Thank you for sending us Maia and allowing us to take care of her for you. Thank you for Shannon’s health and strength. Thank you for our family and friends.
We pray that one day Maia will know you well, but in the meantime we will carefully watch over her and try to raise her to be just like you.
Shannon and Elias
Monday, May 24, 2010
Anna Grace Update
I received THE phone call from MUSC today. It is a dreadful feeling to see MUSC on your caller ID - even though I was waiting for the call, when it finally comes your stomach just sinks.
Anna Grace's surgery (the Glenn) is scheduled for June 24, 2010. We will most likely travel to Charleston on June 21 as Anna Grace has some pre-operative testing which has to be performed prior to the 24th.
Please be praying for Anna Grace, for our family, for her surgeon, Dr. Bradley, and for the whole team (anesthesia & nurses).
They have to stop my daughter's heart, it is scary. I am thankful that the Lord is soverign - He sees us, He comforts us when we call upon Him and His will is perfect. Lord, please strengthen us for this journey!
Anna Grace's surgery (the Glenn) is scheduled for June 24, 2010. We will most likely travel to Charleston on June 21 as Anna Grace has some pre-operative testing which has to be performed prior to the 24th.
Please be praying for Anna Grace, for our family, for her surgeon, Dr. Bradley, and for the whole team (anesthesia & nurses).
They have to stop my daughter's heart, it is scary. I am thankful that the Lord is soverign - He sees us, He comforts us when we call upon Him and His will is perfect. Lord, please strengthen us for this journey!
Friday, May 21, 2010
Amazing Light
I took this picture the other night in front of my house. It was completely dark outside and I had to play around with the camera shutter speed to get the shot. Basically what you’re seeing in the photo are two cars coming down the street and one car moving up the street.
I find it interesting the camera can take the dark and small lights and stretch them out into long cool beams of light – Amazing! But here is something that is even more electrifying…
2 Corinthians 4:6
For God, who said, “Let light shine out of darkness,” has shone in our hearts to give the light of the knowledge of the glory of God in the face of Jesus Christ.
God takes humans who are “in the dark” because of their sin and by the power of the Gospel “enlightens” their hearts to the glory of Jesus Christ.
John 8:12
“I am the light of the world. Whoever follows me will not walk in darkness, but will have the light of life.”
I find it interesting the camera can take the dark and small lights and stretch them out into long cool beams of light – Amazing! But here is something that is even more electrifying…
2 Corinthians 4:6
For God, who said, “Let light shine out of darkness,” has shone in our hearts to give the light of the knowledge of the glory of God in the face of Jesus Christ.
God takes humans who are “in the dark” because of their sin and by the power of the Gospel “enlightens” their hearts to the glory of Jesus Christ.
John 8:12
“I am the light of the world. Whoever follows me will not walk in darkness, but will have the light of life.”
Tuesday, May 18, 2010
Anna Grace - May 18
Anna Grace had her cardiologist appointment today - thank you all for praying for her! She wasn't a happy camper during the visit today (which everyone in the office can testify to), but thankfully we were able to get her O2 sats and blood pressure checked. Her O2 sats are hanging out in the low 70's now (mostly 71 today). Her cardiologist said that he would recommend to Dr. Bradley for her to have surgery in June - not to push it out to July. So, hopefully we will be getting a surgery date scheduled very soon. He said to start preparing for the family to go to Charleston in June. I will keep you posted on a surgery date when it gets scheduled.
Something else to be in prayer about.... Anna Grace is truly a Momma's girl. She gets very upset when people even look at her (hence all the crying at the cardiologist office) and VERY upset when someone else holds her. When we get to Charleston she is going to have to be handeled by lots of different people - nurses, doctors, etc and I am not always going to be able to be with her. Please be praying for the Lord to comfort her and calm this fear in her.
Anna Grace has her 4 month well-baby visit tomorrow (we're about a month behind on this) and most likely this will be her last appointment with her regular pediatrician until after Charleston.
By the way, Anna Grace weighed in today at 13 pounds 2 ounces and is 24 inches long. She is growing at a very steady rate and thus far we have not had to "fortify" my breast milk - which is common for heart babies prior to their Glenn to boost their weight. She is still on straight up breast milk and I am thankful for that! Overall, today has been a great day!
Something else to be in prayer about.... Anna Grace is truly a Momma's girl. She gets very upset when people even look at her (hence all the crying at the cardiologist office) and VERY upset when someone else holds her. When we get to Charleston she is going to have to be handeled by lots of different people - nurses, doctors, etc and I am not always going to be able to be with her. Please be praying for the Lord to comfort her and calm this fear in her.
Anna Grace has her 4 month well-baby visit tomorrow (we're about a month behind on this) and most likely this will be her last appointment with her regular pediatrician until after Charleston.
By the way, Anna Grace weighed in today at 13 pounds 2 ounces and is 24 inches long. She is growing at a very steady rate and thus far we have not had to "fortify" my breast milk - which is common for heart babies prior to their Glenn to boost their weight. She is still on straight up breast milk and I am thankful for that! Overall, today has been a great day!
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