Brian came up to the hospital on Thursday afternoon and let me go home for a much needed shower, some Zachary time, a good meal and a full night sleep. It was such a blessing to be able to step away for a little while.
Yesterday Anna Grace was started on 1 hour compressed feeds. She did OK but not great. She had some vomiting and lots of crying during most of yesterday afternoon and evening. The nurses ended up putting her back on 1 ½ hour compressed feeds for a while to give her tummy time to settle before moving her back up to 1 hour compressed feeds. The nurses finally had to give her some Oxycodone to help her settle down. It was a big day for her and I think stressful and trying for Daddy to see her like that. Brian said she fell asleep last night about 11:30 pm and slept quietly through the night. She has been on 1 hour compressed feeds today and seems to be OK. She will be having her swallow study today at 1:00 pm. Please be praying that she PASSES so that we can start working with her on taking a bottle by mouth.
Also, we have been trying for the last two days to get a urine sample from Anna Grace for some labs the doctors need. They have tried twice to cath her with no success. Then they tried taping a bag to her little private area to catch the urine, but the urine keeps leaking out of the bag. This morning Mee-Mee came up with the idea of sitting her in a bucket to catch the urine. So…. As I type Mee-mee is holding Anna Grace in a bucket in hopes of catching urine (with no bowel movement) in the bucket. Interesting……
The doctors will be starting Anna Grace on blood pressure medicine today. She is staying on 1 hour compressed feeds today. Please join us in praying over this for Anna Grace.
Zachary’s birthday is coming up this week – he will be three years old. I am hoping that even in the midst of the chaos that we can still make this a special time for him. I’m going to try to make time today to buy him a birthday present. He is being such a big boy, but it has been hard for him being away from his parents for such an extended period of time.
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1 comment:
Tina,
I am member of First North and have been praying for your little Anna Grace since our mutual friend Jennifer Scruggs asked her facebook friends to pray for her months ago. My bible study group here at work, other co-workers and my facebook friends have been and will continue to pray for Anna Grace, for you and Brian and for Zachary. Thank you so much for your updates to your blog! I look forward to reading them and love knowing exactly what to pray for. I share them with my fb friends as well as those praying here in my office. We are lifting you all up in Jesus' name!
Michelle
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