Anna Grace went for her first "walk" outside today. The doctors said that we could "unhook" her for 15 minutes so we loaded her up in a stroller and the whole family went outside into the fresh air. It was her first time outside. She basically crashed out as soon as the stroller started moving. She was asleep by the time we actually got outside. Another tip for Mommy to remember when she starts getting fussy.... load her up in the stroller :)
It was a sweet time even though it was only for a few minutes. As long as the weather permits I'd like to make it part of our daily routine. It was good for me too :)
Her feeds were compressed to 45 minutes today - she seems to be tolerating it OK - no vomiting, but lots of fussing during the feeds. We tried twice with the bottle today. She drank 12 ml by mouth the first time and she drank 25 ml by mouth the second time. It's slow, but it progress. Please continue to pray that she will be able to take ALL her food by mouth - then we won't have to talk permanent feeding tube....
Also, my prayer warriors, I would like to ask you to pray for the Wilson family. They have a little heart baby named Josiah who just turned 8 months old. We have gotten to know the family here at MUSC. They are Christians and their little boy has HLHS. Josiah went to be with Jesus today. My heart breaks for Josiah's parents. Pray for comfort and peace and strength for them in the coming days. You can check out their blog at www.thewilsonheart.blogspot.com - Trusting God......
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Your heart is strong thru Jesus--- just as your daughter's grows!! She got to smell and see His beauty OUTSIDE!!! A quicker reason for her to charge forth with HIM-to get well quicker in His love and grace!!
We are praying for The Wilson's and the loss of precious Josiah-- yet Christ's gain of such an awesome warrior! His awesome heart will be whole and alive thru His love, face to face, hand in hand. Praying for healing of his dear family.
In His Grip,
Heather (Hetty) Siebens @AliveinMe
Oh my goodness Tina! Do you know how amazing it is that Anna Grace took 25mls by mouth already? She is doing great! I think the most Charlotte took from a bottle was 10 when we left the hospital. And I am so happy that y'all got to go outside. I'm sure you felt almost normal for a few minutes.
I will be praying for little Josiah's family. I have been following along with his blog for a while now. It's just absolutely heartbreaking.
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