Things are going well today - Mommy is tired from middle of the night feedings - but, such is life with a newborn! Our Mee-Mee has been such a big help this week, I am going to be SAD to see her go tomorrow! Zachary still can't let me out of his sight for fear that I'm going to leave him again - I am praying that with time this will pass for him. ALso, praying that we won't have ANY reson to go back to the hospital before our scheduled Heart Cath on May 10 :) Quarantine, quarantine, quarantine!
I wanted to also let you all know Anna Grace's "official technical" diagnosis. There were some more additional things wrong with her heart than we thought before her surgery. Our daughter is truly a living, breathing miracle - may I NEVER take her for granted or forget how merciful God has been to our family.
She does have "Hypoplastic Right Heart Syndrome" - but that is just the broad general name of her diagnosis. Specifially, listed below are Anna Grace's heart defects.
Diagnosis:
Tricuspid Atresia
Transposition of the Great Arteries
Aortic CoArctation
Ventricular Septal Defect
Pulmonary Stenosis
Patent Foramen Ovale
Whew..... truly a miracle that we are home with our daughter! Praise be to GOD!
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